Sorry it’s been awhile since my last post; information has been a little sketchy, but here’s the latest. Julie was discharged on 6/24, but is now back at Froedert; she has been there since 7/8. She has something called Engraftment Syndrome (or autologous graft vs. host disease); this was the cause for all the problems with her bowels. The stem cells that were reintroduced are causing the issues, and they are not behaving – even though they are her own cells. She is on a liquid diet, and is being treated with steroids till the problem goes away; Dr. Saad tells me the problem is not chronic, but it needs to be treated. Pretty miserable experience at the moment, but as far as I know they can treat this and move on.
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Hello,
Thanks for the update Rick. Dang it!
I am so sorry to hear that Julie has to go thru this as well. I am also disappointed that those cells aren’t behaving as they should. I will continue to pray and hope and believe that there will be better days ahead!
Trust in God, he has not abandoned you. He WILL pull you thru!
Love you all!
Barb
Thanks Barbie; i’ll pass along to Julie for sure!