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Archive for March, 2010

3/30_Update

We had an appointment with the cardiologist today; had to address the issues with the fluid Julie has (or should we say had) around her heart. Her Myleoma Doc (Saad) was concerned about this, so we needed to have it checked out. Good news is that the CT/Echo showed that the fluid has decreased, and the thought is that it will continue. This can potentially hold up the SCT (stem cell transplant) but it’s looking more and more like it’s from an infection, that dates a few months back; in fact, the Cardiologist decided that it’s too small to even tap; hopefully Doctor Saad will just move forward after consulting with the Cardiologist. At our meeting last Thurs., it appeared that the Myeloma numbers are fluctuating, higher than before; these were taken during a chemo week, so I’m sure he’s going to want to see us after the next round which starts up again Mon., and assumptions are that we’ll be moving ahead with the SCT at some point in the next 2 months, maybe sooner. Talked to a lot of people on the web who either have Myeloma or are caregivers, and clearly, this is the new “normal” for us, so we just need to hang in there, make the best of the situation and hope for a lengthy remission after the SCT. Thanks again to everybody for all the help, prayers and good wishes.

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3/15

It’s been a while since the last entry, so that means things are going in the right direction. Just got back from Theda Clark, and Julies numbers all looked really good: red blood cells. platelets are all much closer to normal than they have been in a long time. So she has been off chemo for about 7 days, and today we start back up with a lower dose of Remvalid for 10 days, and the Velcade/Dexamethasone 2x a week; then another 7 days off. We go to Froederdt on Fri. for a Echo on the heart, then back to see Dr. Sadd the following week on Thurs., 3/25. Julie has a new Facebook page too, if you want to talk to her there:

http://www.facebook.com/?ref=home

She may not answer, but I guarantee that she is looking! So feel free to give it a try. Weather is great here, that sure helps! Talk to you in a few weeks.

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